Special Informational Webinar - After AZEDRA: Moving Forward Together
In this special webinar, Pheo Para Alliance is joined by experts in the treatment of metastatic #pheochromocytoma and #paraganglioma to discuss the discontinuation of #AZEDRA recently by announcedt by #Lantheus. AZEDRA is currently the only FDA-approved treatment for metastatic, non-resectable pheo para. Guests include
Camilo Jimenez, M.D., MD Anderson
Erik Mittra, M.D., PhD, Oregon Health & Sciences University
Daniel Pryma, M.D., Penn Medicine
Questions and timing are as follows:
Q 1 at 06:44 What happens now that Azedra is no longer available?
Q 2 at 11:07 Is Azedra no longer available to new patients? Will patients who started Azedra treatment be able to complete their treatment?
Q 3 at 11:49 Why are they stopping production of Azedra?
Q 4 at 16:43 Is there anything we can do - grassroots campaign, for example - to stop or delay the cessation?
Q 5 at 23:22 Is something better than Azedra coming soon? I have a vagal paraganglioma that is avid to Gallium DOTATATE. Targeted chemotherapy would suit me but what options will I have when Azedra has gone?
Q 6 at 25:40 Is Lutathera as effective for people who responded well to AZEDRA?
Q 7 at 25:53 How might side effects from treatments like Lutathera (PRRT) differ from those associated with AZEDRA?
Q 8 at 31:38 Can I be treated with Lutathera (PRRT) if I was treated with AZEDRA? If yes, are there any caveats?
Q 9 at 34:12 What clinical trials are currently available? Is the Belzutifan trial still open?
Q 10 at 41:54 Are there any SDHB specific treatments that have shown to be effective in the treatment of paragangliomas?
Q 11 at 43:22 I have received 500 millicurie of Azedra with partially positive results. My doctors recommended another dose of 300 millicurie but I don’t feel very safe.
Q 12 at 45:07 My insurance covered AZEDRA. Will it cover a different therapy? What can I do if it doesn’t?
Q 13 at 48:37 Can any of the doctors take a moment to discuss the out-of-pocket cost of AZEDRA and Lutathera?
Q 14 at 50:57 Are variations of unknown significance (VUS) included in the Beltutifan trial?
Q 15 at 51:32 Are there any clinical trials directed at methylation?
Q 16 at 53:53 What is the role of lower doses of MIBG?
0 views
697
218
4 days ago 00:21:59 0
Star Nation News 79 VF - 23 juin 2025
2 weeks ago 00:13:08 9
EEUU atacó y se viene CONTRAOFENSIVA iraní!
4 weeks ago 00:00:43 2
💰¿Quieres Ganar Dinero Online con Productos Listos Para Vender?#shortsvideo #shortvideo
1 month ago 00:16:19 0
Hollywood, la fin d’un rêve ? L’industrie du cinéma contrainte de se réinventer • FRANCE 24
3 months ago 00:22:05 0
PRÉPAREZ-VOUS AU CHOC, ÉCOUTEZ BIEN CE QUI SE PASSE
3 months ago 00:16:21 1
La vérité sur ce qui se passera le 8 avril 2024
4 months ago 00:12:13 0
Marco Rubio’s irrelevance in Trump world
4 months ago 00:08:48 1
A Large Group of BRITISH and FRENCH Mercenaries Were Blown to Pieces During Their Escape From KURSK
5 months ago 00:05:00 7
L’armée israélienne se rebelle contre Netanyahu : La brigade Givati se retire !
5 months ago 00:00:00 6
La Matinale 21/01 : Emission spéciale investiture de Donald Trump : l’Histoire bascule !
6 months ago 00:10:05 1
IDIOTS IN CARS --- Bad drivers & Driving fails -learn how to drive #1288
6 months ago 00:59:02 2
Soviet & Socialistic Grooves from 60s-70s / New Year Special by BASIC – L’atelier de Musique Ep006
6 months ago 00:04:39 0
Boney M. - Ma Baker (Sopot Festival 1979)
6 months ago 00:04:59 0
How some friendships last — and others don’t - Iseult Gillespie
6 months ago 00:04:26 1
Ça s’est passé lors du discours de Manu pour 2025 ! Ma réaction !! On se fout de nous ? 23
6 months ago 00:10:16 6
🟥 Bayrou se RIDICULISE et crée un GROS MALAISE en Plein Direct à Mayotte !
6 months ago 00:40:17 0
Поздравляю с Новым 2025 годом- Feliz año nuevo 2025 - Happy New Year 2025 Test 997
6 months ago 00:34:18 0
Why Saudi Arabia is Building a $1 Trillion City in the Desert
6 months ago 00:00:28 0
Pipe Clamp Pipe Support for Mineral Processing Plant. Mining Wear and Spare Parts Factory Supplier
6 months ago 00:10:38 0
Crypto Signals Telegram Group : Are They Worth It in 2025?
6 months ago 00:24:33 0
GAZA NOW 20 DEC 2024 🇵🇸
6 months ago 00:04:35 3
L’énorme bourde de Bayrou à l’assemblée nationale ! Mayotte… On se fout de nous ? 14
6 months ago 00:04:16 0
[KIKI TRIP] Special ClipㅣKIHYUN ’Tokyo Flash’ COVER
7 months ago 00:10:00 0
MARCEL D. : LE MINISTRE JEAN-NOËL BARROT SE FAIT PIRATER SON PORTABLE