In this heartfelt video, I share my personal journey of raising a son with Angelman syndrome, alongside insights from Colin Farrell, a fellow Angelman parent. Titled “Like Colin Farrell, I Have a Son with Angelman Syndrome: What I Wish I’d Known,“ this video delves into the joys and challenges of parenting a child with this rare neurogenetic disorder.
After our son Theodore was born, his infectious happiness was a source of joy, little did we know it was an indicator of Angelman syndrome. Diagnosed after his first birthday, Theodore’s condition, like Colin Farrell’s son James, involves severe neurologic impairments, including seizures, lack of speech, and motor difficulties. Despite these challenges, Theo’s resilience and happiness shine through, offering a unique perspective on the condition.
In this video, I discuss our initial shock, the importance of finding supportive communities, and the need for early intervention and persistent advocacy. I also share practical advice fo
1 view
5899
2939
3 months ago 00:04:01 1
Madonna - La Isla Bonita (Official Video)
3 months ago 00:00:36 1
transformation
3 months ago 00:00:00 1
KJ | HÖR - June 5 / 2024
3 months ago 00:03:44 1
DJ VAL - See This World ♫ New Racing Super HiT ♫
3 months ago 02:10:16 1
Арестович & Латынина: Что такое Украинская идея.
3 months ago 01:30:55 1
Man’s First Friend | The Epic Story Of Humans And Dogs
3 months ago 00:47:13 1
СЛЕПАЯ: Мимо цели, Правый берег
3 months ago 00:04:31 1
P!NK - Try (The Truth About Love - Live From Los Angeles)
3 months ago 00:00:20 1
13 days, 13 donuts
3 months ago 00:15:08 1
Proof
3 months ago 00:00:31 1
GI.O | HÖR - June 5 / 2024
3 months ago 00:02:37 1
House of the Dragon Season 2 | Official Trailer | Max
3 months ago 00:02:22 1
“Everybody Loves My Baby“ (Boswell Sisters, 1932)
3 months ago 00:01:53 1
The 5 Worst Races on Earth
3 months ago 00:05:59 1
Paralydium - “Sands Of Time“ - Official Music Video
3 months ago 00:02:19 1
NOFX - I’m a Rat (Official Video)
3 months ago 00:06:10 1
Leonard Cohen - Dance Me to the End of Love (Official Video)
3 months ago 00:09:39 1
Toned Legs Workout (Exercise Without Equipment)
3 months ago 00:01:01 1
This man rescued a lost lion cub and raised it by love #shorts
3 months ago 00:04:34 1
U2 - One (Official Music Video)
3 months ago 00:19:10 1
TEDxOrangeCoast - Daniel Amen - Change Your Brain, Change Your Life
3 months ago 00:04:36 2
Based Oracle - Potions (Official Video)
3 months ago 00:00:38 1
We rescued a truckload of dogs that were about to go to the slaughterhouse
3 months ago 00:04:09 1
RADIO TAPOK - Битва за Москву (В стиле Sabaton / ИзиРок / - Defence Of Moscow)