Jonah aged 5 Neuroblastoma with opsoclonus myoclonus
My son Jonah aged 5 with a very clear shot of his dancing eyes. (opsoclonus myolclonus)I shot this video over the top of the hospital tv and you can see when he spots I am there.
Background info: Jonah suddenly stopped walking last October and then his arms went all wobbly and then his eyes went. It took 6 weeks for the hospital in London to find the tumour. He has had a resection (operation to remove the tumour) but unfortunately the tumour is growing again. He has dexamethasone steroids IV thr
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