How to Launch a Respiratory Support and Palliative Care Competence Center

Webinar “How the Competence Center for respiratory support and palliative care based on a charitable organization is used in a year - the experience of Kazakhstan“. During this webinar, colleagues shared their favorites of the Center, which began with a meeting between pediatric palliative care specialists Natalia Savva and co-founder of the Omirge Sen public foundation () Sabili Shugelova. Within a few months, their idea turned into a full-fledged patient army, providing comprehensive care for children with neuromuscular muscles. On June 1, 2022, the Competence Center opened its doors to the first patients, and today its specialists provide assistance to more than 500 patients. Speakers: - Gulnara Kunirova - President of the Kazakhstan Palliative Care Association, Chief Specialist in Palliative Care of the Ministry of Health of the Republic of Kazakhstan; - Sabila Shugelova - Co-founder and Director of the «Өмірге сен» (Omirge Sen) Charitable Foundation; - Natalya Savva - Ph.D., Associate Professor, Expert at the Respiratory Support and Palliative Care Competence Center of the «Өмірге сен» (Omirge Sen) Charitable Foundation; - Nurbek Bakhytov - Anesthesiologist-Resuscitator at the Respiratory Support and Palliative Care Competence Center of the «Өмірге сен» (Omirge Sen) Charitable Foundation; - Shyryn Amantaeva - Nurse at the Respiratory Support and Palliative Care Competence Center of the «Өмірге сен» (Omirge Sen) Charitable Foundation. 00:00 Introduction 02:27 Speakers presentation 06:17 Start of presentation 07:13 Current situation with pediatric palliative care in Kazakhstan 18:26 «Өмірге сен» Foundation 28:42 Center’s organization, team selection and training 57:53 Center’s work today 1:09:57 Questions 1:36:18 Conclusion of the webinar PACED was created in 2017 to bring more people in Eastern Europe and Central Asia (EECA) to quality control palliative care.