PheoPara Alliance 4 17 23

Pheo Para Alliance Medical Advisory Board member Dr. David Taieb joins us to talk about somatostatin receptor PET imaging -- like Ga-68 DOTATATE -- as well as why and when to use it in the management of #pheochromocytoma and #paraganglioma. Q 1 at 33:31 Is Cu-64 DOTATATE imaging as sensitive as Ga-68? Is there a reason to consider one over the other? Q 2 at 34:08 With SDHB genetic mutation, should this procedure be conducted periodically? Q 3 at 35:30 What are consensus guidelines for imaging requirements post paraganglioma/pheochromocytoma excision? Q 4 at 37:50 How often should I have a pet scan? Q 5 at 41:03 Can DOTATATE PET scan identify metastasis in the liver? What is the best image modality for the diagnosis? Q 6 at 42:26 What type of scan should be done for very small paragangliomas in the biliary system Q 7 at 44:43 Do non-secreting tumors always show up in scans? When they are in the lungs is there a certain scan that works better than others? Q 8 at 48:12 I have a 21-month-old son. What are the safety precautions with proximity/isolation, and for how long? Q 9 at 49:24 Can tumor be not detected in the scan when it is not secreting? Q 10 at 49:57 Is it possible that there are pheos/paras that give symptoms but cannot be detected by current scans, e.g. they have not yet discovered receptors? Q 11at 56:33 What’s the minimal size of a tumor which can be detected by Ga-68 DOTATATE scan? Q 12 at 57:25 Do we know what is the percentage of pheos/paras with somatostatin receptors? Q 13 at 57:44 If you have light up in your spine should you get an MRI or the PET scan?
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